In the years that I’ve been sick.  My illnesses have multiplied and compounded.  What began as a diagnosis of mono, eventually became Myalgic Encephalomyelitis and Fibromyalgia.  Later I developed a rapidly advancing muscle...

With the weight of our collective and individual worlds, everyone is struggling in their own shape and form. Reaching out for others is incredibly important, but its hard to do that without feeling guilt due to the collective trauma and pain that...

The history of institutionalization, marginalization, and oppression of individuals with mental and physical disabilities are as old as recorded history.  The fear, shame, and lack of understanding that have accompanied many disabilities has...

I’m the only white kid in my family. Understand, me saying that does not give me some kind of get-out-of-racism-free card, just a different lens on growing up white than the one you may have had. Being the youngest in a family with two brown...

For five years now I’ve been getting infusions to keep my body from fighting itself.  Infusing meds are a big part of modern rheumatology.  Thanks to the large population of folks with rheumatoid arthritis, there are now a growing...

Myositis is a type of inflammatory myopathies that are most commonly thought to impact the muscles (which they do) but they can also affect the heart, lungs, GI tract, and be associated with the development of cancer.  Myositis is considered...